Perhaps you've heard the phrase "First, do no harm". It's a phrase used in medicine, and it refers to the physicians duty to consider first how any interventions or treatments may cause unnecessary harm when treating a patient.
When it comes to living with PCOS, I think that before we start trying to add new and helpful things into our diet or routine or supplement regimen, we first need to take a look at anything that needs to go. As helpful as improving our nutrition or anything else may be, if we are still clinging to things that are counter-productive, we may find that the results of our efforts are slower or less than we might hope for.
The list in this post may seem random at first glance, but these are all pieces of the puzzle, and unfortunately, balancing hormones is a fairly complex puzzle as anyone who has tried will attest to. The exciting thing, though, is that the pieces do start to come together and make incremental differences that will build upon each other and ultimately bring about real change and improvement!
To start us off, here are the first five of ten items I want to address, in no particular order:
1) Soy
In a very brief nutshell, here is the main issue with soy as it relates to PCOS:
- Soy phytoestrogens disrupt endocrine function and have the potential
to cause infertility and to promote breast cancer in adult women.
To read a fairly short and simple but helpful article on the effects of soy, including on hormones, see Soy: Is it Healthy or Harmful. As well, this Soy Alert! index at the Weston Price site (where the above statement was taken from) is a goldmine of articles addressing all of the various concerns with soy. I can't say it strongly enough, but soy is NOT the health food that it is promoted to be! In my personal experience, I have previously been told to try using soy for my hormone issues, and it is evident within days that it is doing nothing but throwing me even further off balance, as I grow more irritable, tired, and begin to break out. Soy is a definite no-no, in my books!
2) Refined sugars and grains
I have only addressed it briefly so far, but a large part of the underlying problem in most women with PCOS is the way their body handles blood sugar and their insulin balance. Clearly eating more sugar only exacerbates this problem (particularly refined, white sugar, rather than whole food sweeteners such as fruits or even honey, which are lower on the Glycemic Index than white sugar). Eating foods high on the Glycemic Index (which are usually refined and/or sugary), causes your blood sugar to spike quickly, and then drop, influencing not only your hormones, but also your weight, mood, energy and more.
As for refined grains (source),
We know that eating too much sugar can lead to blood sugar imbalances.
Since white flour breaks down into sugar, it too can lead to blood
sugar problems.
I often work with people suffering from blood sugar problems who try to defend
their diet by claiming that they don't eat any sugar. Yet they have
a bagel for breakfast, pasta for lunch, pizza for dinner, and snack on pretzels
all day long--not realizing that even though those foods don't
taste sweet, they quickly turn into sugar! As far as your blood sugar is
concerned, your body doesn't know the difference between a teaspoon
of sugar and a slice of white bread!
Of interest: Replacing White Flour with Whole Grains in Four Simple Steps, Adjusting your Taste Buds Part 1, and Part 2, and Traditional Diets (an excellent overview of Weston Price's findings and dietary suggestions)
3) Environmental Estrogens
These are chemicals (usually toxic) which act similarly to estrogen in our bodies. Technically, these environmental estrogens are called "xenoestrogens", and they are a major problem because they mimic and disrupt hormones, and can actually trick the body into thinking that it has too many or not enough hormones, and can seriously mess with our delicate hormonal balance. Many of us have bodies that are on a bit of an estrogen overload, or have "estrogen dominance" as it is often referred to. Here is a great article which explains this concept.
A few specific places to avoid these xenoestrogens: pesticides, herbicides, conventional meat (given growth hormones), plastics (BPA, PCV, dioxin, etc.), fabric softener and dryer sheets, soy, beauty products (pthalates and petroleum-derived chemicals like parabens)
Some of the information out there is a bit sketchy, but these are some of the better lists that I was able to find of environmental estrogens and how to avoid them: Environmental Estrogens and Xenoestrogens Interfere with your Normal Hormones, and Health and Xenoestrogens (note- I don't know much about either site, so be discerning- I'm recommending these sites/articles solely for their lists and info on what to avoid, nothing else). As well, here's a good article from EWG on Nine Ways to Avoid Household Toxins. I know this is a lot of information and links, but take what you can from it and don't stress out about the rest! You can always come back to look at it again later.
4) The Pill
Upon diagnosis of PCOS, most doctors will quickly pull out their prescription pad and suggest using the birth control pill to "regulate or establish regular menstrual cycles". Nothing could be further from the truth.
Though the Pill gives the appearance of a regular cycle, in actuality it is suppressing the natural hormones that cause a woman's cycle to occur, and the bleeding that comes about at the end of the month is a false, withdrawal bleed, not the result of a completed menstrual cycle. This completely undermines our efforts against PCOS, as it suppresses and upsets the hormonal balance that we are trying so hard to re-establish. What we want to do, as I will discuss more in future posts, are things that will support a normal hormonal balance and thus a naturally occurring menstrual cycle, rather than one controlled by drugs!
In addition, the Pill has these (among many, many other) effects, that also fight against those of us with PCOS:
In Solved: The Riddle of Illness, Dr. Stephen Langer writes
that "the Pill. . . can cause severe bodily damage in hypothyroidism." Oral contraceptives may aggravate insulin resistance and longterm
risk of diabetes and heart disease... Many women taking the Pill have reported weight gain--a sign
of estrogen dominance and/or insulin resistance--as well as depression
and even psychosis.
Excellent information on this topic in the article Rethinking Reproductive Health, and Just Say "No" to Birth Control Pills (and no, I'm not trying to give my opinion on what method of birth control to use, if anything, but am only trying to highlight some of the dangers of using the Pill specifically).
5) Caffeine
Forgetting for the moment all of the other reasons you know that coffee (and other caffeinated beverages) are bad for you, let's focus on a few that may have a direct impact on PCOS:
- Coffee and other stimulants increase insulin levels, a definite negative for those struggling to control insulin and blood sugar levels
- In general, caffeine intake has been linked to lowered fertility rates (this is somewhat debated- there are stats on both sides of the debate)
- Caffeine contributes to acidity in the body (rather than neutral or slightly on the alkaline side as they should be). This acidity can impact hormonal balance.
- At the very least, caffeine minimizes absorption of important minerals and other nutrients, and can even cause our body to excrete (get rid of) excess nutrients through our urine. When trying to build a healthy body with a healthy hormonal balance, we want to keep every nutrient we take in!
Next week, I'll cover the next 5 things to avoid, and then I'll move on to some of the things that we want to add in to our diets, as well as lifestyle changes and supplements that can help!
For what it's worth, to those who may be looking at this list and feeling discouraged, I don't do it all perfectly. Out of these five and the next five, the two that I really struggle with the most are sugar and caffeine. I've mentioned before that I grew up eating a lot of junk, and with a real addiction to sugar and coffee. Old habits die hard. Though I have gone through long seasons (since working on my health) where I have been completely caffeine and/or sugar free, I have not managed to do either one continuously. At home, I find it easy to avoid sugar, but when out with friends, I struggle with saying no and feeling left out. When it comes to coffee, I find I can give it up pretty easily, but then when I move into seasons of extra stress and tiredness, I pick it back up as a comfort food and a way to cope with fatigue.
I am currently working to seriously cut both refined sugar and caffeine completely out of my diet once again, as I know full well the effects they have on my body. I hope it's helpful to know that I'm not some sort of wonderwoman who finds this all to be a piece of cake. It's natural to struggle to give some of these things up, but I want to encourage you (and myself) to keep pressing on and doing the best we can to steward our bodies and our health, for His glory!
What are your thoughts on these first five items? Which is most difficult for you? What strategies do you use for avoiding any of these items?
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{ 17 comments… read them below or add one }
Interesting, since I started drinking soy milk, my pcos and hirsutism got so much better. Also exercise and eat small portions of meals is helping me a lot. I eat several times a day. I eat 6 t0 8 times a day, exercise every day for 45 minutes, and I drink soy milk half glass before each meal. I was in the Atkins diet and make my hirsutism and constipation worse. I tried to be vegan and that was hell for me.(the sugar in fruit make my pcos and hirsutism really painful) The soy milk helps me a lot with my body temperature( I have hypoglycemia symptoms) but, I do not have Diabetes. It also makes my skin soft, helps my nails grow faster and stronger and my body looks better, I am finally getting rid of my apple’s body shape. Something else is helping me is b12 vitamin and a probiotic called Lalacult. It has 26 billion of active lactobacillus. It is the best probiotic I have ever tried, Kefir is not even close to this one, and Yakult is not strong enough even though looks so similar to Lalacult. Exercise, exercise is going to help you a lot with the blood circulation and memory and concentration problems which I used to have a lot.
Something I always asked my self was if soy milk is soo bad. why asians don’t have any of those problems as we do?? Also I have many male classmates that drink soysilk in the morning, and they do not have health problems, no thyroid problems or something else.
Some one once told me that she read an article that stated if you have PCOS, your body is not absorbing sodium. This felt true to me because my body was already mimicking signs and symptoms and too much sodium with just a bite of one meal. The taste lingered in my mouth, causing me to crave sweets. So I have cut out sodium in my own cooking and concentrated sweets. I now crave a salad instead of a donut. But I was am a vegan, trying to eat meat again. I’ rather not eat meat, but I read that that is the “cure” to PCOS. My symptoms did improve while eating meat.
I am 23 and just diagnosed with PCOS. I have always been “over weight” but now i know why! But now that i know what i need to know im looking for some helpful ways to start eating better. I have cut pop out totaly, I only drink a few cups of coffee on the weekends and when im at the mall, im watching my portions but im still having alot of issues with the eating better…blah blah blah that i can stand from my dietitian. I have been on metformin for about 2 months now and have taken birth controll pills in the past but i have an issue remebering to take them. So i am concidering using merina (iud) my gyno and i have talked about this and we feel this is the best idea for me. sorry i know this is all mumble jumble of stuff but im just looking for some help to help myself get on the right track!
your comments on PCOS on the whole were interesting:
As a scientist and a PCOS sufferer I’ve done a lot of reading on soy and PCOS. I can say one thing there are no answers out there, the only conclusive bit of research I’ve seen when it comes to soy suggests no effects hormonally only a lowering of LDL cholesterol which is a good thing…
The information here about the pill and its negative impact on the body makes me really nervous. Once I hit puberty, I gained a lot of weight and a lot of body hair out of nowhere. I was miserable and felt very unattractive–the only thing that wasn’t threatened was that I had a very regular monthly schedule.
When I started the pill, within the next two years I noticed a fantastic shift–my features softened and looked feminine again, and the excess and confidence-crushing body hair lightened and thinned. It was a tremendous boon to my overall emotional well-being, so this news makes me very concerned and scared. I hope it will not be a long-term problem for me to remain on it since my menstrual cycle was regular from the start.
Hello, Im 24 years old and just found out that i have PCOS, I am a mother of an 18 month old and noticed all the changes in my body after i had him. At first I didnt want to believe it so I continued living and eating the way I always have until I noticed things changing like thining of hair and breaking out really really bad. My doctor told me that in order for the systoms to stop I needed to be on birth control and Metformin. I have been taking birth control and Metformin for three months now and noticed that my systoms are getting worse. I have always had really thick hair and you could never see my scalp, now you can totally see my scalp and its really depressing, I’ve been searching the internet to find information on what to eat because my whole life i’ve never eaten healthy so I really dont even know where to begin.
I finally had a break down the other day and realized that I’m not normal and I need to change my eating habbits and take care of my body, but I still find myself crying because I feel that im so young and I have to deal with this and of course none of my friends understand because they dont even know what PCOS is. But I know that I need to deal with it and get my life back on track in a healthier way. Ill miss candy and coffee but I know I need to stop. I would like to know from anyone what they eat if they are craving chocolate? because chocolate and ice cream are my absolute favorite, I think im addicted to it……LOL.
Thank you so much for putting this website up, I feel alot better after reading everyone’s comments, I dont feel alone anyone. :)
Silvia, from my understanding, there shouldn’t be a problem with taking with taking the flaxseed. To my understanding, it doesn’t have nearly the same estrogenic effect that soymilk does (and good for you to get off the soy!). However, I wouldn’t take too large of a dose of it, to be on the safe side. By one glass, I assume you mean a glass of water with some ground flaxseed mixed in, which I would think should be fine.
Hi everybody. Thank you for this article. This is my second cicle on clomid and although the gyno increased the dosagge, my “ovulation” was even worst than last period.
I´m suposed to ovulate tomorrow but I don`t even have a leading follicule. Last month I had a decent, eventhough late, follicule. But nothing at all this month.
This month I switched from cow milk (has a lot of DHT)to soy milk. Also took one glass of flaxseed daily. Now I understand why I shouldn´t drink any more soy milk. But is it the same for flaxseed?
Please, if anyone knows if flaxseed should not be taken with clomid, please post back.
Thank you very much,
Sivia
Thank you for this post very informative and helpful. I enjoyed reading this.
-mj-
I am 24 and have been diagnosed with PCOS. The symptoms came up after I stopped yasmin and then I was put on the trial for the ‘Neuvo ring’. I went off the neuvo ring because it caused huge problems in my longterm relationship and then shortly aftyer that I became pregnant. However my then partner convinced me that an abortion was the best option as we were not ‘ready ‘ to have a child.
After my abortion, I started to get acne and mild hituism, I put on a little bit of weight, but not much and i became very manic.
A few months later I went back on Yasmin, but I bled the whole tome, I then switched to Vallete and that made me experience post abortion stress disorder and severe Depression. So as of March this year I stopped all hormonal Therapies and my moods and weight were completley out of balance, even though I was exercising, and eating well as I have always done.
I had an ultrasound later this year, only to reveal that I have possible polycystic ovary syndrome (PCOS)
After talking to many women about the issue, I realize it is more common than not.
A referred gynocologist tells me I need to go on Dianne and then Clomid when I want to have Children.
This Gyno knew about my recent reactions to hormonal therapies. I listened to him, as he is so highly regarded. That said,
I went on Dianne for 7 days, I had a bipolar episode and almost died, I was hospitalised and am lucky to be alive.
Dianne was so strong, I was nauseous and teary the whole time.
I know that it may seem that I am blaming these hormonal therapies, but I’m not. I just dont remember if my body functions well or not on it’s own, because i was on Yasmnin for so long. i dont want to punish my body anymore.
I am having acupuncture, herbs, and Hypnotherapy at the moment.
I think my body is on the mend.
Thankyou, as I dont want the pill to ever be an option
Stephanie – Thank you so much for posting! I am 35 and have had a terrible time with PCOS. I have lived on birth control pills, metformin and clomid for years (not anymore, thankfully!). My husband and I tried for YEARS to have a child when we were finally blessed with our daughter, which I believe was through God’s grace alone. After having her, I decided not to continue with all of those pills as they didn’t make anything better but seemed only to make things worse. Sadly, in 6 years there have been no other children for us but I am so thankful for all that I have in my daughter. I am so frustrated that this condition is so prevalent, the leading cause of infertility in women yet, the medical community seems to have nothing more to offer other than a bunch of pills and a “wait and see attitude”.
Thanks for letting me vent!
Blessings.
Angela
Stephanie~ I can’t tell you enough how much I appreciate your posts about PCOS. I can see so many similarities between you and I in the way you think and the things that you do. My thoughts and prayers are for Joanna who had the hysterectomy. I am 33 also. Thankfully, so far I have avoided such procedures. Doctor’s have really frustrated me also. Having stevia on hand has helped me to avoid sugar. I make smoothies with kefir and yogurt and fruit and I add a small amount of stevia to that along with coconut oil and flax seed. I, like you, am on a mission to be sugar free; however, I have moments here and there when I cave in to the temptation. But those times are getting farther and farther apart. I am getting stronger and wiser and more dedicated. How do you feel about green tea. I know it has some caffiene, but it does have the protien L-Theanine in it that is supposed to have a calming effect. Do you consider it okay? I think the Weston A.Price Foundation is a great resource. The benefits of the common sense found there has been made evident in different cultures and in my life personally. I took birth control and metformin for a year several years ago. I only got worse. The only thing that has helped is eating things that God created for me. Great post! Great comments! Please keep the PCOS info coming!
It looks as if most of your information comes from the Weston A. Price site. I believe that a lot of the information from there is questionable, certainly not scientifically proven, so I really think you should look for other sources. They are very biased about a lot of things when they don’t (or might not) need to be, IMO. And they promote a diet that is not sustainable for everyone in the long run.
I think there is too much controversy about soy. I haven’t fully made an opinion, so I continue to eat it in small amounts. This doesn’t seem to cause me a problem.
I totally agree with #2, and I think that’s probably the hardest for me. I usually buy whole grain products, but I still love refined sugar! ;)
I’m not sure of the impact of environmental sources (#3) but it just seems reasonable that people should limit their contacts with them. Some are hard to avoid, but some are very easy to change. We’ve been working on that.
I think the pill has been useful for a lot of women with PCOS, but I admit, I don’t know what adverse effects they may experience. I know that it doesn’t work for me personally, but it has nothing to do with PCOS for me.
Caffeine…oh boy. I used to love the stuff, but it doesn’t love me anymore. So there are times when I really miss it. ;) Again, I doubt my intolerance of it has anything to do with my PCOS, but who knows. ;)
Definitely sugar! I lived on it when I was in my teen years, and to this day, it is a struggle to stay away from it. But I have noticed it’s one of the biggest things that contribute to my PCOS. If I can stay away from sugar on an almost daily basis, I’m much better off and actually cycle every once in awhile. Before, I’d go literally years without a cycle. And caffeine only calls my name on those nice cold winter mornings. All I want is a nice hot cup of latte. I’ve found that a cup of organic cocoa made with raw milk satisfies almost as much, when I really feel the need.
*and Kellie – my doctors have told me the same thing! Yet I totally proved them wrong :-)
Awesome! Thank you! I was SO hoping that wehn I came here tonight I’d find another PCOS post! WOO HOO! I can’t WAIT for the next one.
I find it very easy to not have caffeine, as it seems to be THE biggest factor is shakiness and insulin stuff during the day. Plus, as you can tell, I’m pretty animated without it. The hardest for me is the pill – mostly because the doc told me that no matter what for the rest of my life until menopause I need to be on Clomid or Birth Control -Comforting, huh?!?! However, I have been losing weight and this is my third month off the pill and my cycle is still NORMAL!!! How is that even possible? Maybe a month or two more until it gets all freaky again?
Joanna, I am so sorry to hear about your surgery. What a difficult decision that must have been. It is so unfortunate that most doctors are not willing to talk about the natural options for improving PCOS. It makes me frustrated, and it is a large part of why I write what I write. I hope that the health changes you are making now do help you! And what a blessing that you were able to have your daughter before this happened. Blessings on you!
I really appreciate your blog. I have struggled with PCOS my whole life, and you are the first person I have heard talk about natural solutions to address the symptoms of this disease. No doctor has ever mentioned dietary changes or anything other than going on the pill, taking metformin, and trying fertility treatments when ready to conceive. Because of my symptoms, I finally broke down and had a hysterectomy a few weeks ago at the age of 33. I wish that I had known to try some of the things you suggest before making this decision….perhaps my surgery could have been postponed or avoided. However, we are incredibly grateful for the gift of our 3-yr-old daughter, Grace. I will keep reading your blog and I want to make many of the changes you suggest to improve my health. Thanks so much for the great info!